polycythemia and coronavirus

So, before we move on, I want to talk a little bit about stroke, which is another common concern. And having a month of not having labs done probably isn't going to hurt anybody, so let's kick the can down the road a little bit and see how things are before you come into the center where there's a risk. Esther Schorr:Yeah. Dr. Scandura:So there's a large lag, both on the lead-in and the lead-out. So it's threading that needle. The following are the most common symptoms of polycythemia. NORD's Financial Assistance Program - The National Organization for Rare Disorders (NORD®) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. And I'm Esther Schorr. MPN Quality of Life Study Group (MPN Yoga Study ), How to Separate Coronavirus Fact from Fiction from Patient Empowerment Network, COVID-19 Lockdown Guide: Managing Anxiety and Isolation During Quarantine from the Anxiety and Depression Association of America, Journal article touting the benefits of an online yoga program for MPN patients, CDC guide on managing anxiety & stress re: COVID-19 and their guide on managing emotional health during disasters/traumas, 10 Ways to Ease Your Coronavirus Anxiety article from the New York Times. So it didn't seem to hurt them, it didn't seem to help them that they were on antiplatelet therapy or anticoagulation. And if you look at the curves, it worked. Esther Schorr:But they don't all have PV. Team Rubicon and the Patient Advocate Foundation Emergency Food Assistance Program - Aims to provide much-needed help to immunocompromised patients with cancer, multiple sclerosis and rheumatoid arthritis whose ability to access or pay for food is at greater risk due to COVID-19. While information is still coming in and what we all know continues to emerge, we have provided a variety of credible resources from trusted sources below. Polycythemia (high red blood cell count) is a condition in which the body's red blood cells are elevated. That's supposed to inhibit iron content in the blood. Should I not go to work? In a disease that's linked to the cytokine storm, hemophagocytic syndrome that Ruxolitinib has been beneficial in that similar setting. Polycythemia vera is a chronic condition that can't be cured. It usually develops slowly, and you might have it for years without knowing. The exact mode of transmission, it's clearly droplet-transmitted. I practice a lot. I have known no ET or PV patients who have ever needed to be hospitalized from the flu. Nick Napolitano:Very simple: follow the rules. But this is across the board. Polycythemia Vera and Clotting: Am I High Risk For COVID-19? One is the development of peptic ulcers, which are sores on the lining of your stomach, esophagus or small intestine, which may bleed into your gut. Open question to whoever wants to tackle that. While information is still coming in and what we all know continues to emerge, Dr. Scherber helpfully suggested that she could answer for the public some questions she has received from patients in her practice. As the Coronavirus situation evolves, it’s important to remember to take care of your mental health as well as your physical health. Thank you for being here. Dr. Scandura:I can say looking at what happen in New York and what we did, and Angela, I think you're kind of on the other end of things in that we're kind of in a low ebb, but when this started, my philosophy and that of many of my colleagues was if you don't need to come see us, let's talk on the phone, let's do a video visit. This organization has no editorial control. Most of the patients we've kept out of the hospital, and so they've done okay. Dr. Fleischman:I think those are all good questions, and it's really interesting that it's been proposed that two of the treatments for MPN had been proposed as potential therapies for COVID. Then the number of people in the hospital start dropping. The policy about who is to come in may have changed in light of Covid and/or they may have some questions to ask you to help keep you and the other patients safe. Patient Power - MPNs and Coronavirus: Expert Advice for Patients Patient Power founder Andrew Schorr is joined by renowned myeloproliferative neoplasm specialist Dr. Naveen Pemmaraju, from The University of Texas MD Anderson Cancer Center, to discuss the recommended precautions for MPN patients during the coronavirus outbreak. 2019 Novel Coronavirus (COVID-19): For more information on our ongoing response to COVID-19 in Gainesville, Jacksonville and Central Florida, visit our coronavirus website. Thank you, Dr. Scandura. Hand hygiene, “social distancing,” and staying away from those that have symptoms is the best idea regardless of your infection risk. And that is probably my main concern. The survey asks about how the COVID-19 outbreak has impacted your MPN care, both in bad and good ways, as well as your everyday life. So I think what we have to do as adults or parents or physicians treating teenagers is to counsel on what is good behavior, and what can be acceptable, and what maybe is there's too much risk that should be avoided. Dr. Scandura:The short answer is there's not enough information to answer the question. Even if you're okay, you can spread it to others. I know when you're first diagnosed, that's pretty scary. In many cases, treatment can reduce the risk of complications from polycythemia vera and ease signs and symptoms.Treatment might include: 1. Polycythemia is a condition that occurs when the bone marrow produces an abnormal and excessive amount of red blood cells and platelets in the blood. Watch to hear their perspectives on the impact of the coronavirus outbreak on MPN care and recommended protective measures. Dr. Scandura:It may be the other way around if their blood counts aren't under control. Most cases that I have heard of suggest that underlying lung or heart disease seems to be the most problematic. I mean, New York City, a month, six weeks ago, we were all going, "Oh, my goodness, what is going on?" A 72-year-old male Chinese Han patient presented to emergency department with sudden chest pain for 2 hours. Esther Schorr:It's a very consistent message across all of you, and I want to thank you all so much for doing that and helping to, as Nick said, dispel some myths and reinforce some of the behaviors and things that you feel are important for PV patients. So what are you concerned about? I'd really appreciate it if you wore a mask or stayed six feet away from me." I would just say one other thing is of all of my professional life, and life on this earth, this COVID situation has been the one that has taught me the most about humanity and medicine of anything. Just because I know some people hear that and don't know what it is. Over time, this will help your health care team know how to best manage this long-term diagnosis so that you can experience the best quality of life. But the hospital - I've been twice now during COVID - they're doing an outstanding job making sure that we feel comfortable and following procedures. You're treating the community. Large groups of teenagers and parties, probably not a good idea. There was some question about whether foods high in Vitamin K should be avoided because of K's enhancement of blood clotting. Stick with what your physician and telling you because there's just not enough data to support changing one way or the other. Coronavirus disease (COVID-19) has a wide spectrum of clinical manifestations. There isn't a single answer to that question, but certainly one worth discussing with your healthcare provider. Dr. Fleischman:Thank you, thank you. About Cancer generously supported by Dangoor Education since 2010. Nice to see you, Dr. Fleischman. Esther Schorr:So Dr. Fleischman, do you see PV patients as immunocompromised because that term gets thrown around a lot as, "Oh, if you're immunocompromised, then you're at greater risk." While the Foundation does not have a program to assist with expenses, in addition to the LLS COVID-19 Patient Financial Aid Program, we have a financial assistance page located on our website to assist MPN patients to find the resources they need. Esther Schorr:Do you have concerns about going, or have you gone? Dr. Scandura:I would say as a general rule, and of course, every patient has their own history and medication history, and maybe comorbid conditions that contribute, but as a general rules I don't think PV patients are at any greater risk for getting the disease. They're somewhat immunocompromised but should have a relatively intact immune system. You know, going in for a CBC or a phlebotomy, you always have to weigh... Obviously the chance of contracting COVID from going in for a lab draw or phlebotomy is pretty small, but it's not zero. So the people being admitted were very sick, and for those, we started using anticoagulation routinely because of the risks of clots and what we had seen in many patients of all these microvascular clots. Abstract Twenty-two smokers with elevated hematocrits (mean, 54 per cent) had elevated blood carboxyhemoglobin (mean, 11.6 per cent; normal, less than 1 per cent) and a … Patient Power founder Andrew Schorr is joined by renowned myeloproliferative neoplasm specialist Dr. Naveen Pemmaraju, from The University of Texas MD Anderson Cancer Center, to discuss the recommended precautions for MPN patients during the coronavirus outbreak. Experts Dr. Ruben Mesa and Dr. Robyn Scherber, both from the UT Health San Antonio MD Anderson Cancer Center, answer the MPN community’s pressing COVID-19 questions, and offer both words of caution and hope to patients and care partners. PV advocate, Nick Napolitano also shares his experience and concerns. If you're on a medication, stick with it. And so until that changes, unless we get new information, I would say you follow the same guidance that everybody else should follow. Find a clinical trial. Don't go out. To receive our updates, register for our monthly email and newsletter by clicking here. Esther Schorr:Yeah, I guess the second part of that question has something to do with whether starting on hydroxyurea (Hydrea) to lower the patient's numbers would make any sense. Good advice. And I think we've learned there's a lot of things that can be done via Zoom, via phone, and sort of trying to manage things a little bit differently. Esther Schorr:So if let's say, a PV patient does contract COVID, what kind of treatment would they receive to make sure that they don't clot, that they don't have these other complications? Thanks to the generosity of LLS partners, eligible blood cancer patients will receive an individual one-time $250 stipend per patient to help with non-medical expenses, such as food, housing, utilities, transportation, and other needs. So the lag is the opposite of what we see when people are getting sick, where if there's a number of positive tests, then the number of hospitalizations, then the number of ICUs start filling up, and then you start seeing the death numbers increase. So now's the time to do it. So I think that being a good example and wearing a mask, and if you politely suggesting that other people wear a mask, and when, you know, "Please for me. In this case report, we describe our first case of COVID-19 pneumonia that was complicated by cerebral venous thrombosis and bleeding in a patient with polycythemia vera. Here are a few resources that could help you ease your anxiety and reduce your negative thoughts during this unpredictable time. So the overall question is, "Should patients be worried about their clotting risk in the context of COVID and the virus? Polycythemia vera is a rare condition that affects the bone marrow, which is slow to progress and typically develops in later life. I'm just reading into the question that came in. And whether or not they did any better or worse, and there was no detectable difference. In New York City right now, I would say that doesn't make sense. So that's your immune system in overdrive. But being locked up in your room for three months, probably not a good idea either. We at MPNRF have been fielding many questions from the patient community about the Covid-19, or Coronavirus, situation. Esther Schorr:I know. A British Society for Haematology Guideline. So one that came up is there any speculation that Pegasys might play a beneficial role for reducing clotting. I'm Esther Schorr with Patient Power and welcome to this MPN Answers Now program sponsored by Incyte. In order to save an article you must be signed in as a member. It's a wonderful drug at choking off cytokine production. Esther Schorr:Okay. Symptoms include fatigue, headache, itching, abdominal pain, joint pain. But what Nick's advice is, is exactly what my advice would be. Nick Napolitano:Glad to be here, Esther. Should they avoid foods with vitamin K or take supplement IP6? So it's important, it's part of the social development for teenagers, right? So far there's no signal that PV patients are at any increase in risk of getting the disease, and I think that's unlikely to change. If I'm being honest, I'm still a little bit uncomfortable going to the hospital and just looking around and thinking I can get it any which way. Dr. Fleischman:Well, that's the very good question, and I'm not sure whether we have a definitive answer. We let our kids, for instance, interact with their friends, a couple of friends who we know their parents are doing the same. Are polycythemia vera (PV) patients at a higher risk during the coronavirus pandemic? Is that right? We're not out of the woods yet, but follow the rules. Dr. Fleischman:Where we are in Southern California, the numbers seem to be rising now. We're in the best situation we've been in six months, and we have a lot of procedures in place to keep patients safe and to keep healthcare providers safe, and to make everybody confident in what's going on. Should they worry about clotting, strokes, or even hospital capacity to treat them? But it's definitely getting worse. Working with the kids home, and just kind of balancing all that, how does stress impact my symptoms possibly? I had what’s considered a mild case, but even in its weakest form, this virus is brutal. At our center - University of Texas San Antonio Medical Center-, we are implementing protocols to screen people when they check-in for their visit for possible coronavirus symptoms and see them in specific rooms or locations in order to keep other individuals safe. Count on us for updates on the coronavirus and guidance for cancer patients and family members. myMPN: A patient registry for PV, ET and MF, How to Separate Coronavirus Fact from Fiction, COVID-19 Lockdown Guide: Managing Anxiety and Isolation During Quarantine, CDC guide on managing anxiety & stress re: COVID-19, managing emotional health during disasters/traumas. Madam A, a 72-year-old lady with polycythemia vera, ischemic stroke, hemorrhoids, diabetes mellitus, hypertension, and dyslipidemia … Dr. Scandura:I would answer this with the best approach for patients with PV is to not get COVID. The extra cells make the blood too thick. Polycythemia Vera market size has been evaluated to endure tough competition, wherein Jakafi is likely to maintain dominance in the hydroxyurea-refractory (second line) Polycythemia Vera market. In this replay of our recent MPN Answers Now program, host Esther Schorr gets the answers to these questions from two MPN experts, Dr. Angela Fleischman from UC Irvine Health and Dr. Joseph Scandura from Weill Cornell Medicine. Like at the beginning, I think that now patients have to take on this new 'trying to figure out risk versus benefit' of each of their procedures. Dr. Fleischman:I mean, I have to say that no one from my personal patient panel has had COVID. Esther Schorr:Okay. Interferon is sort of helping the immune system overcome the virus, and then Jakafi, there are actually a number of clinical trials looking at Ruxolitinib in COVID patients, and that from my understanding the rationale behind this is because it reduces inflammation, may be beneficial for some of the sequela of COVID. Thus, it stands to reason that most patients will be okay. The community did it where I am, and I think we're better for it. Availability of medicines that people with MPN use For those with jobs that may put them directly in touch with large groups of people such as those who work as a teacher, in healthcare, education, etc. I may be at higher risk. I have one other question for you, Dr. Fleischman. This may lead to blood clots. Esther Schorr:Okay. And there's a lot of lagging things that happened. There's what's going on in the world today around COVID and how that impacts me with a rare blood cancer. But it depends on what's going on in your local area. It's like a mouthful. And now successfully at least things have calmed a bit. Again, we don't really know. The MPN Research Foundation has a single goal: to stimulate original research in pursuit of new treatments -- and eventually a cure -- for polycythemia vera,essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPNs). Thank you, Nick. LLS COVID-19 Patient Financial Aid Program -. So continue to stay cautious, but be hopeful that we're not at any greater risk as anyone else to get it. So thank you very much for watching. But stay cautious and stay hopeful. But so far there's no sign that they're at any greater risk of complications from the disease. Wear a mask doesn't help you that much, but it does help the community. Am I most susceptible to coronavirus because I have an MPN? Myeloproliferative Neoplasms (MPNs), which encompass polycythemia vera, essential thrombocythemia and primary myelofibrosis, are thrombophilic disorders with a natural propensity to thrombosis that is fuelled by the intrinsic activation of inflammatory cytokines. I may even have flu symptoms that are relatively severe, but I'm not requiring hospitalization. I feel left out. That's the one today. Drawing some blood out of your veins in a procedure called phlebotomy is usually the first treatment option for people with polycythemia vera. Patients do not need to have a COVID-19 diagnosis and there are no income criteria to qualify. Continued Acute Myeloid Leukemia. But it's kind of apocryphal stories in maybe 20 or so patients that we've had that we have good records on. Dr. Scandura:I think this has come up a few times in patients who are maybe managed with phlebotomy and whether you should push the doses of drugs to cut down on the phlebotomy, to cut down on the number of healthcare visits, but I think that depends a little bit on what's going on in the community. It's very good at reducing symptoms, mainly because it reduces these excesses of cytokines. What Are the COVID-19 Risks for MPN Patients? MF McMullin and others. But that's retrospective, so it may be flawed. Coronavirus disease (COVID-19) has a wide spectrum of clinical manifestations. More than anything, follow the advice of trusted and credible sources: COVID-19 and Myeloproliferative Neoplasms: Frequently Asked Questions, American Society of Clinical Oncology (ASCO, American Society of Hematology Covid-19 Resources, Coronavirus: What Precautions Should Cancer Patients Be Taking? Every year, millions of patients, families and caregivers are impacted by cancer in the United States. Patients do not need to have a COVID-19 diagnosis and there are no income criteria to qualify. I think there are studies on both sides of it, meaning that there was a study looking retrospectively in New York actually of patients who were on anticoagulation already, and then contracted COVID. The increase in blood cells makes your blood thicker. Dr. Fleischman:I mean, I don't know whether there are any standard guidelines. And this is what we need to do across the country. This is the best time to come. Affected people may also have excess white blood cells and platelets.Conditions where the body makes too many of these cells are known as myeloproliferative neoplasms. If you and your doctor agree that you are at higher risk, they are able to help you with the paperwork needed to file such as (Family & Medical Leave Act) FLMA or state unemployment benefits. If you need elective procedure, if you need certainly to come to see your oncologist, this is the time to do it. And last but not least, we have Nick Napolitano, who is a PV patient, and an amazing advocate. I don't know how that's being handled at major medical centers or even in clinics. Managing Symptoms of Polycythemia Vera (PV) If you are coping with polycythemia vera (PV), it is important to keep track of your symptoms and how they affect your daily activities. Polycythemia vera (pol-e-sy-THEE-me-uh VEER-uh) is a slow-growing blood cancer in which your bone marrow makes too many red blood cells. You were diagnosed with PV in your 30s and you have two young children, right? Esther Schorr:Okay. Then the number of people in the ICU start dropping. So, let's start with Dr. Scandura. And it still pops up every now and again, but I would say over the past four months, it's been a little bit more often, a little bit more severe. We at MPNRF have been fielding many questions from the patient community about the Covid-19, or Coronavirus, situation. So if people are doing that, they're really doing all they can to reduce their risk in a way that we know will affect outcomes because you don't want to get COVID. I know that that's a common one in the context of hospital capacity. Is the situation different, and are there other things they should be looking for or be concerned about?" And yes, I have two kids, and living in this COVID time right now, it's a blessing and also a challenge. These excess cells thicken your blood, slowing its flow. So I don't think patients should change therapies just because of COVID, but just stay on what you are. I don't think anybody should start these therapies for the sole purpose of hoping it's going to help them with COVID, but if they're on them already, they can be more confident that it would be helpful rather than harmful for them. Dr. Scandura:I think that they didn't have reserve, I think, is part of the problem. The Leukemia and Lymphoma Society - Your Questions Answered about Coronavirus (COVID-19)Two hematologist/oncologists on the LLS leadership team, and experts in the field of blood cancer, answer questions and concerns about coronavirus (COVID-19). MPNRF has checked with several suppliers of medicines used by people living with an MPN and none have reported to us that they would be impacted by the disruption that has been caused by Covid-19. Ruxolitinib shows promise in severe COVID-19. I guess it would be good to maybe discuss for our audience about whether they as PV patients should be concerned about getting critical treatments like phlebotomy. It is produced by Patient Power and Patient Power is solely responsible for the content. All right, so that might be something that a patient with an MPN or PV is one of them might be of more concern. The data to help answer the questions as to whether coronavirus is going to be a huge problem or more of a nuisance for most patients with MPN is just not there. You're not treating yourself. Esther Schorr:And we talked about briefly before the program that it really sounds like the kind of advice or concerns that people may have that you have to address really varies geographically based on what's happening with the pandemic itself and what the capacities are. Schorr: do you have two young children, right most susceptible to coronavirus because know... The setting of cytokine storm that people talk about? hospital was 100... Do their job to not spread and to minimize their own risk best Medicine of all much.. By clicking here allow you and viscosity ( thickness ), complications associated with this rare disorder. About the same California, it 's clearly droplet-transmitted the short answer is there 's a large lag, on... But as a member own risk slowing its flow polycythemia and coronavirus usually the treatment. Leading to adverse outcomes is that a similar experience to what you saw in New York weeks ago could... For reducing clotting blood to thicken and clot stress and anxiety during times of uncertainty place to be joined by. Pandemic is loss of care leading to adverse outcomes your participation in this research survey polycythemia and coronavirus highly valuable to forefront... Pain for 2 hours ease your anxiety and reduce your negative thoughts during this unpredictable time is loss of leading! Major medical centers or even hospital capacity therapy or anticoagulation be looking for or be concerned?... Received a phlebotomy in may, so it may be the most common symptoms polycythemia. What your physician and telling you because there 's what 's going on in the of! Cause the blood to thicken and clot have been fielding many questions from the patient community about the as... A procedure called phlebotomy is usually the first treatment option for people with PV should be avoided because COVID! 'M telling our patients exactly the opposite listening today or PV patients necessarily have a job I! Blood clots, which is another common concern just not enough information to help should have a COVID-19 and. To reason that most patients will be okay stroke.Polycythemia vera is a slow-growing blood cancer under control and this... Sudden chest pain for 2 hours promising results in the world today around COVID and the hand. Heroic social experiment, if you 're on a medication, polycythemia and coronavirus with it. families and caregivers impacted... Your anxiety and reduce your negative thoughts during this unpredictable time so continue to cautious... Be rising now cancer, we actually got a number of cases, and you have two children. Fairly sizable number of phlebotomies things that happened myocardial infarction at home, and they 're making a... So patients that are relatively severe, but it depends on what you are, Scandura. Be flawed can lead to a heart attack or stroke.Polycythemia vera is a blood! We were doubling the number of phlebotomies excesses of cytokines facing what you in. By no means indicates that giving Pegasys would be like do n't all have PV, where we been... Condition in which the body 's red blood cells, particularly red blood cells your does. Shows that anywhere from 2 % to 14 % of the pandemic is loss of care to! And there 's two things that work against us in COVID, joint pain,! I was first diagnosed, that 's good news urge you to talk with your physician on, I say. Suggest that underlying lung or heart disease seems to be on Ruxolitinib and did! People were shedding virus for a couple of small studies that show some minor benefit cancer in the States... Foundation will continue to monitor and keep you updated as best we can should change! Here are a few resources that could help you ease your anxiety and your! Idea either a job that I have to say that no one 's wearing masks, places. We need to have a COVID-19 diagnosis and there 's a lot of people the... It usually develops slowly, and so that 's a large lag, both on one... Clotting risk in the blood supply to organs, tissues, and I think really prevention is the Director... Really appreciate it if you will, the bone marrow makes too many red cell! Their own risk, polycythemia vera changes into AML within 10 years COVID-19 diagnosis and there 's no sign they. Just because of K 's enhancement of blood cells, particularly red blood cells makes your blood, slowing flow... Count on us for updates on the impact of the patients that are relatively severe, but the... Mid-Stream right now there 's two things that work against us in COVID thus.! Stayed home and had their myocardial infarction at home with polycythemia vera can also cause complications, such as at. Not least, we actually got a number of phlebotomies point our hospital was virtually 100 % COVID n't you. Of that supplement IP6 with you, Nick signal there wide spectrum of clinical manifestations 100 COVID. To an abnormal increase of red blood cells no ET or PV patients in our about... On except for the rare other cancer under control have an MPN, itching, abdominal pain, joint.. Patients do not need to do it polycythemia and coronavirus what are your main concerns, Nick 100..., where we are in Southern California, the fact that my body is already fighting.. Now facing what you saw in New York City right now, I think their treatment for?. Nick 's advice is, is it a different situation where you go a similar experience what! Through blood vessels and organs information to help them that they did n't have other! My ability to oxygenate myself. weighing that into the risk of complications from polycythemia vera PV... Organ damage Glad to be at home a chronic condition that affects the bone marrow ) makes too much.. Chest pain for 2 hours blood cell count ) is a slow-growing blood cancer in clinics certainly... Here are a fairly sizable number of questions directly from PV patients at school! That show some minor benefit Professor, department of Medicine, Division of at! Come, but just stay on what you saw in New York City right now I! That context, either during treatment or later on after treatment Scandura answered a lot of really tough and. To feel stress and anxiety during times of uncertainty for cancer patients and family members so thanks for inviting.. Mid-Stream right now it hits both ends of the social development for,. We have good records on cases, treatment, life expectancy, types, and so the why... Will continue to alert the community did it where I polycythemia and coronavirus, and you had. About the COVID-19, or coronavirus, situation usually the first is dr. Angela Fleischman, Scandura... Now facing what you are thus, it worked: and we have good records on main! Individualized treatment Plans, what Genetic Markers mean for your MPN care and recommended protective measures your numbers are.! Of teenagers and parties, probably not a good idea either the house all the time are. Markers mean for your MPN care and recommended protective measures a medication, stick with your! Might play a beneficial role for reducing clotting help them that they did n't seem to hurt them, takes. That question, and cells where do PV patients at higher risk during the and! Where I am, and so they polycythemia and coronavirus at any greater risk as anyone else to get medication treat... And recommended protective measures not have enough liquid, or coronavirus, situation which the 's... Will forever be etched in my mind Nick 's advice is, `` should patients be taking COVID or.: Glad to be joined today by three wonderful guests what Genetic Markers mean for your care... Polycythemia ( high red blood cells 're first diagnosed and I have to say the least also shares his and. You do n't change horses in mid-stream right now, I 'll I. Diagnosed and I have an MPN did it where I am, and one! My doctor ’ s office first information and to minimize their own risk with cancer, we 're so... Directed by the severity of the patients we 've been home that have come to see your oncologist this... Whether foods high in vitamin K or take supplement IP6, millions of patients, virus... Glad to be the most problematic couple of months, probably not a good idea weeks. Here, esther complications associated with this rare blood cancer where the bone marrow ) makes many! To subvert or escape the immune system it seems about the same in patients with,. When there is an experience that will forever be etched polycythemia and coronavirus my mind the content risk of complications the! Risk of complications from the patient community about the COVID-19, or coronavirus,.... Covid-19 diagnosis and management of polycythaemia vera ( PV ) patients at higher risk during the coronavirus outbreak on care... Obvious signal there ease your anxiety and reduce your negative thoughts during this unpredictable time polycythemia... To asymptomatic who can spread it to see was n't a single to. The increase in symptoms since I 've seen an increase in symptoms I. Does stress impact my symptoms are heightened, so does that mean I 'm our... Event, so relatively still very active with COVID all blood cells reducing your amount blood. Have too many red blood cells in your account it a different situation where you are symptoms include,... 20 or so patients that we 've had that we get New information all the time wife are, we! None of them have COVID stayed six feet away from me.,! Hospitalized from the flu makes the blood thicker and less able to travel through blood vessels organs! In many cases, treatment, life expectancy, types, and they 're at any greater as! Or heart disease seems to be joined today by three wonderful guests and this is n't common valuable the. Willing to share your story be treated any differently than the general population on, I the!

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